After more than 20 years of diabetes, you would think I’m used to this feeling. The uncertainty of sitting in the doctor’s office waiting for the result of my a1c every three months. No. Never. I still don’t like the days I go to my endocrinologist and they poke my finger for this test result.
I know people have told me that it’s just a number, going to the doctor is more than your a1c, it’s not all that matters, and that helps me keep this in perspective. But seeing it at 7.8 this time was disappointing and I guess I was wishing for it to be better. I’ve been having a lot of trouble with my pump sites, sometimes forgetting to bolus for dinner, and I know basal rates are a bit questionable/not quite right in the morning. But thanks to my wonderful endocrinologist who changed my pump settings, it’s making a difference in my blood sugars! Yay Insulin Pumps! These next three months will be better!
I’m also looking into getting back on the Medtronic CGM sensor and getting my blood sugar back in control. Hopefully by next time, my a1c will be 7.0 or lower! I’m going to try to stay positive! :)
At least the CareLink USB now works on Apple computers using Firefox!
Here’s to the next few days of 2 hour tests to check my basal rates! :-)
My twin sister, Jackie, and I want the whole world and especially those involved with the Diabetes Online Community (DOC) to know how spectacular Kerri Sparling’s new book, ”Balancing Diabetes: Conversations About Finding Happiness and Living Well,” is! We’ve admired, respected, and laughed along with her through the years, but seeing her attain this new level of success makes us even more proud of her!
After reading her book, I, as a diabetic myself, feel truly inspired and honored to know Kerri as a person; she has a true gift of reaching people and with such grace and wit too! I’ve been saying to myself all these years, “I don’t know how she does it!” and now I’m finally beginning to understand! Reading about Kerri’s diagnosis, growing up, going to camp for the first time, her sibling’s memories, falling in love and being blessed with her beautiful daughter has not only brought me back to the olden days of drawing insulin cocktails and fighting the urge to eat that darn birthday cake, but it has also showed me what I have to look forward to and how to handle experiences I have yet to deal with.
It also made me very grateful and touched my heart when I read Chapter 4 about Siblings and Diabetes. Kerri has so many people in her life that are her “Diabetic Angels,” take her brother and sister for example. Seeing how much they care for her reminds me of my twin sister Jackie, who was also a contributor to her book. I know for us, me growing up with diabetes & having her as an integral part of my care makes my sister and I closer, because I know there is never a minute that goes by when she’s not wondering if I’m okay, or losing sleep over it.
“…there were so many nights I would stay awake to make sure she was okay. It was terrifying to think that one morning I would wake up and she wouldn’t. I became her protector, always aware of changes in her breathing or sleeping, setting alarms to remind her to test her blood sugar at the appropriate time, grabbing juice and a snack for her when she couldn’t, and on two occasions before we were ten years old, setting up the glucagon kit and calling 911 while our mom held Mollie in her arms after she experienced an episode with dangerously low blood sugar levels.” - Jackie Singer, Chapter Four, Siblings in Balancing Diabetes
Reading about her brother, sister, mom, husband, and close friends being her “Angels” is so special. And as I’m sure every one of us diabetics out there have said at one time or another, “Thanks for watching over us!” So thank you Darrell, Courtney, Debbe, Chris, and Jackie for being Diabetic Angels!
"Diabetes is a disease that affects the whole family. It’s not just the person who is receiving the injections or pump infusion sets or finger pricks who’s carrying the full weight of diabetes. I don’t know if my brother and sister understood what diabetes meant when I was first diagnosed and if any of us understood just how big the words without a cure really were. But I know that we learned about diabetes as a family, and dealt with it the same way." – Kerri Sparling, Chapter Four, Siblings in Balancing Diabetes
Balancing Diabetes explains the true complexity of the emotional toll diabetes takes whether you’ve had it for 1 month, 20 years, or not at all. After reading her trial and error tell-all, you don’t even know you’re informing yourself, you’re just inspired to have hope and integrate her subtle helpful hints into your daily life! Diabetes is a roller-coaster ride, and Kerri lures you right into her 27 year personal wild ride full of ups and downs, tears and laughs and if you’ve ever read her blog, SixUntilMe, you know exactly what we’re talking about….Kerri pours her heart and soul into ”Balancing Diabetes: Conversations About Finding Happiness and Living Well” with her witty writing and her positive attitude rings true with each sentence. Like us all, she’s had her fair share of struggles, but she persevered and kept herself healthy and happy, all while inspiring others like my twin sister and me, to do the same. Kerri, if you’re reading this, you are a rockstar and will always be a beacon of light for the Diabetes community!!
Balancing Diabetes: Conversations About Finding Happiness and Living Well is now available on Amazon, Barnes and Noble, digital e-books, goodreads! You can find more about Kerri on her blog, SixUntilMe, you’ll love reading it! She’s also on Facebook, Twitter @sixuntilme, and Instagram!
*As I write this, my blood sugar is very high. So, if this doesn’t make sense, I apologize.*
I try to not complain too much about my diabetes, and I know i haven’t written on here in quite a while, but I’ve been having a really bad “Diabetic Day.” well..lets just call it a “Bad Diabetic Weekend?” yeah. I kept waking up the next day hoping I would feel better, but it seems like my blood sugars are going nowhere along with this cold. No matter how much i correct.
I’ve already gone through 2 site changes, 2 bottles of insulin, taken some shots, and who knows how many bottles of water.
I know when you have a cold, blood sugars are a challenge anyway, but this morning, well last night, I went to sleep and my number was 273, so I corrected and tested 2 hours later (umm 2:30 in the morning) and I was only 197. Then, at 6am, I was so thirsty, I woke myself up. Tested again and I was back up to 251. Woke up at 197. Took a shot to correct even though i was wearing my pump, but at this point, i was not convinced my insulin or my pump site was good. So after waiting a while, I took a shot for my breakfast, 2 eggs and a fiberOne Blueberry Muffin. calculated the carbs, took a shot, ate my cold eggs, and then changed my site with a new bottle of insulin. Waited.
Now it’s 1:30pm in the afternoon, I’m hungry, not really sure how i feel because I’m achy everywhere anyway, (thank you sore throat, chills, coughing) and I tested. Im 421. 421?????? How in the world??? I did not feel this one coming.
Freaking out and not sure what to do anymore, I called my endocrinologist’s office and spoke to them about what’s been going on all weekend. She told me to test for key tones, (she waited on the line- they’re at TRACE, the light pink, 5 level. Not too bad, but still, I have key tones and she told me drink lots of bottles of water) and to re-test my blood sugar. Even though I was had tested 10 minutes earlier and also corrected with my pump, she said to test again anyway. I was 336. She said to wait the 2 hours before correcting anything, and to only take shots using my insulin pens, until I’m back under control. And of course, now, I’m sitting here chugging water and blogging.
I’m hungry. and I’m not thirsty. I don’t want water. anymore. can someone go eat lunch for me??
Being on a CGM Sensor right now would be a good idea. I go into my endocrinologist tomorrow and will ask about what I need to do to get back on it. (If you’ve read my past blogs, you’d know the CGM and I are not the greatest of friends in terms of accuracy, (this was years ago)) so I am open to anything. Any thoughts on what you guys prefer wearing? The Dexcom? The Minimed CGM? Any reasons why one over the other???
Type1 since age 4, 20 years since I was diagnosed! Blogging about diabetes since forever ago and advocating+fundraising for a cure since age 6. I’d love to add you to my blogroll over at curemoll.com?